Connie Norman
PortfolioWordsBlogPublicationsLinksContactceramics
Connie Norman

Posts Tagged ‘rett syndrome’

Team Nora

Friday, February 26th, 2010

24722_ccda355f-c3db-4de6-8e42-0d1b06ecaed6

The reason I’m posting this, is my dear friends Kristy and Justin’s little girl Nora has Rett Syndrome. They are trying to raise money for a cure.  Please donate to http://www.firstgiving.com/du2cteamnora, so one day Nora and all the other little girls can lead a normal life.  

“There are just a handful of disorders that only affect females. Breast Kristy, Nora, Coen, and Justin cancer is the most prevalent. Rett Syndrome is just as devastating, and affects a potential one in 5,000 girls. Condemned to an entire lifetime of struggles, these girls have been robbed of their ability to speak, walk, crawl, use their hands. They depend on others for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis. Today, there is no cure. But Rett Syndrome is CURABLE! Amidst the mass confusion going on within their central nervous systems, they are smart, strong, and waiting patiently for us to unlock the door to their recovery.” (I copied this from the Dress 2 cure website.)

Rett Syndrome has never allowed Nora to talk or walk, and has taken a lot of purposeful hand use away from her, but she fights it every day.  And she’s still a sweet, little girl even through the struggles she faces each day.

http://www.firstgiving.com/du2cteamnora

Thank You in advance for helping!!!